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COMPREHENSIVE CANCER
CARE NETWORK
 

SACHI-CAN CANCER SUPPORT GROUP
sachi
  1. Nearly 50,000 children develop cancer every year in India.

  2. In Trichy & Thanjavur district nearly 400 children are diagnosed with cancer every year.

  3. India has 55 childhood cancer specialists. (Outlook, 2012)

  4. In Tamilnadu totally 6 specialist are available 3 in Chennai, one in Vellore, one inTrichy- Thanjavur & one in Madurai.

  5. Only 40% of childhood cancer patients have access to modern facilities.

  6. Approximate treatment duration of childhood cancer patient is one year and it may extend up to 3 years for blood cancer patients.

  7. Approximate cost of treatment for childhood cancer is 1,50,000 for a patient and it may go up to 5 lakhs for some patients.

  8. In contrast to adult cancer, the actual cost of childhood cancer .....treatment is less but it is the invisible cost that is very high. Since average duration of treatment is nearly one year, parent need to travel a lot, may even need to relocate their house and may need to find a new job.

  9. In contrast to western nation where nearly 80% of childhood cancers are cured, our country has a cure rate of 30- 40% only.

  10. Reasons for Low cure rates are child
    1. Financial Constraints for treatment.

    2. Since treatment duration is prolonged, parents find it difficult to relocate to cities where facilities are available.

    3. Lack of childhood cancer support group.

    4. Illiteracy - Parent fail to understand that even if the disease is under control, it can come back any time if they do not complete their treatment protocol.

    5. Lack of childhood cancer specialist and multimodal approach for managing childhood cancer.

Our Mission
mission
  1. All children with cancer should get complete treatment irrespective of their financial status.

  2. Provide financial assistance for their treatment.

  3. 24x7 Helpline Number 99439 68910 for child hood cancer patients.

  4. Formation of childhood cancer registry in every district.

  5. A team of three Medical Social Workers will be formed to collect the data of childhood cancer in Trichy & Thanjavur district, counsel the parents and make home visits so that we can decrease the default rates of childhood cancer patients.

  6. Encourage formation of Pediatric oncology support group in every district of Tamilnadu.

  7. Encourage cancer specialist to do focused Oncology work.

  8. Decentralize cancer care and take it to the periphery.

  9. Form Tumor board comprising of Pediatric Surgeon, Pediatric Oncologist, Pediatrician, Surgical Oncologist, Radiation Oncologist & Medical Social worker.

  10. Conduct childhood cancer update for practicing Pediatricians, Oncologists & Surgeons once in 3 months to make them aware of the latest development in the field of Pediatric oncology.
.
Madras Metropolitan Tumor Registry
  1. One in 500 boys will develop a cancer

  2. One in 700 girls will develop a cancer

  3. Every year there is increase in incidence of cancer by 2% among boys and 1% among girls.

  4. Common childhood cancers in our area are
  1. Blood cancer (ALL & Lymphoma)

  2. Brain cancer (Gliomas)

  3. Eye cancer (Retinoblastoma)

  4. Kidney cancer (wilms Tumor)

  5. Overall cure rate for childhood cancer is 35% to 40%.

  6. Single most important factor for cure is completing the treatment protocol as per schedule.
 

Age group Cure rates
0-4 years 40%
5-9 years 43%
10-14 years 36%
Male 772 39%
Female 502 41%
Completed Treatment 54%
Defaulted and Incomplete Treatment 25%
childhood
Childhood cancer in chennai, India, 1990 – 2001 : Incidence & Survival, Swaminathan et al.  Int Jr of Cancer: 122, 2607 - 2611
SACHI-CAN CANCER SUPPORT GROUP
Dr.S.Xavier Md (RT) Radiation oncologist
Dr. Arun seshachalam MD, DNB, MNAMS, DM Pediatric & Medical oncologist
Mr. Cyril Alexander MSW Pediatric Social worker
Dr. V.L. Balaji Ms, Mch Surgical oncologist
Dr. A. Muthuram Dch, DNB Pediatrician
Mr. Pitchairaj MSW Pediatric Social worker
Dr. S. Sridharan MS, Mch Pediatric surgeon
Dr. G. Senthil Kumar MS, DNB, Mch Surgical oncologist
Dr. T. Sujit MBBS, DMRT Radiation oncologist
Dr. Thangasaravanan MD Pediatrician
Mr. A. Yogesh MSW Medical Social worker
cancer
It is always painful when a child with cancer comes back with a relapse. It is even more painful when we realize that the relapse is not due to the biology of the disease but due to multiple treatment breaks leading to incomplete cancer treatment. Financial burden, lack of psychological support, ignorance and inaccessibility to modern facilities leads to poor compliance & incomplete cancer treatment. Keeping this in mind, we have all come together to form a childhood cancer support group addressing all these issues and aiming at Holistic childhood cancer care at all levels.
Dr. ARUNSESHACHALAM  M.D., DNB, MNAMS, DM
Pediatric & Medical Oncologist,
Project Co-ordinator

Our Services :
iap IAP - TIRUCHIRAPPALLI BRANCH

IAP - TTKPN BRANCH
cccn COMPREHENSIVE CANCER CARE NETWORK (CCCN )
mact MARY ANNE CHARITY TRUST [MACT]
irdc INTEGRATED RURAL DEVELOPMENT CENTRE
For Donations :
Kindly issue the Cheque / DD in the name of
Children Cancer Fund
All Donations are made to us are Tax exempted u/s 80G income Tax act 1961.
Support us to save a Child with Cancer
“We ourselves feel that what we are doing is just a drop in the ocean.
But the ocean would be drop less without it”
- Mother Theresa



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